Autism and Anxiety: Understanding the Connection and Finding Support

A comprehensive guide to anxiety in autistic individuals – why it's so common, how it presents, and effective strategies for support.

Child finding comfort in a sensory-safe space, representing anxiety support
JH
Reviewed by Jennifer Harbour, M.S., BCBA
β€’Published: January 15, 2025

Our Perspective

"We've seen firsthand how anxiety can be a silent barrier for so many children. It's not just about 'behavior'β€”it's about a nervous system that feels unsafe. At Buzz ABA, our goal isn't just to teach skills, but to build the confidence and emotional safety that allows a child to step out into the world without fear."

Anxiety and autism frequently occur together, and understanding this connection is crucial for providing effective support. When anxiety is addressed, many other aspects of functioning often improve as well.

How Common Is Anxiety in Autism?

Research published in the Journal of Autism and Developmental Disorders indicates that anxiety disorders affect 40-80% of autistic individuals, compared to about 15% of the general population.

According to the National Institute of Mental Health, anxiety is one of the most common co-occurring conditions with autism.

Types of Anxiety Common in Autism

  • Generalized Anxiety Disorder: Persistent worry about many things
  • Social Anxiety: Fear of social judgment or situations
  • Specific Phobias: Intense fears of particular things
  • Separation Anxiety: Distress when away from caregivers
  • OCD traits: Obsessive thoughts, compulsive behaviors
  • Situational Anxiety: Anxiety about specific situations or changes

Why Is Anxiety So Common in Autism?

Multiple factors contribute to the high rates of anxiety in autistic individuals:

Neurological Factors

  • Heightened amygdala (fear center) activity
  • Difficulty with uncertainty and prediction
  • Differences in interoception (body awareness)
  • Sensory processing differences
  • Overlapping genetic factors

Experiential Factors

  • History of negative social experiences
  • Bullying or social rejection
  • Feeling "different" without understanding why
  • Past sensory trauma
  • Failed attempts at fitting in

Environmental Factors

  • Unpredictable social world
  • Sensory-unfriendly environments
  • Pressure to mask or conform
  • Lack of accommodations
  • Not being understood

Processing Differences

  • Difficulty reading social cues creates uncertainty
  • Literal thinking may amplify worries
  • Strong memory for negative experiences
  • Difficulty with cognitive flexibility
  • Intense focus on worries

How Anxiety Presents Differently in Autism

Anxiety may not look like "typical" anxiety in autistic individuals, which can lead to it being missed or misinterpreted:

Behavioral Presentations

  • Increased stimming
  • Meltdowns or shutdowns
  • Aggression or irritability
  • Avoidance and refusal
  • Increased rigidity or controlling behavior
  • Regression in skills
  • Changes in eating or sleeping
  • Withdrawal or isolation

Physical Presentations

  • Stomach aches, headaches
  • Bathroom urgency
  • Appetite changes
  • Fatigue or exhaustion
  • Sleep difficulties
  • Muscle tension
  • Rapid heartbeat
  • Restlessness

Why It's Often Missed

Autistic individuals may not verbalize anxiety in typical ways, especially those with communication differences. Behaviors like avoidance or meltdowns may be attributed to "autism" rather than recognized as anxiety symptoms. Additionally, alexithymia (difficulty identifying emotions) can make it hard for the person themselves to recognize they're anxious.

Common Anxiety Triggers in Autism

Understanding triggers helps with prevention and support:

Uncertainty & Change

  • Changes in routine or schedule
  • Not knowing what to expect
  • Transitions between activities
  • New environments or situations
  • Broken promises or changed plans

Social Situations

  • Unpredictable social interactions
  • Group settings
  • Fear of saying the "wrong" thing
  • Not understanding social expectations
  • Fear of rejection or judgment
  • Performance situations (presentations, tests)

Sensory Environment

  • Overwhelming sensory input (see our sensory guide)
  • Anticipating sensory discomfort
  • Lack of control over environment
  • Unpleasant past sensory experiences

Demands & Expectations

  • Pressure to mask or act neurotypical
  • Too many demands at once
  • Fear of making mistakes
  • Perfectionism
  • Unclear expectations

Strategies to Support Anxious Autistic Individuals

1. Increase Predictability

  • Use visual schedules and timers
  • Prepare for changes as far in advance as possible
  • Provide clear, concrete information about what will happen
  • Use "First-Then" boards
  • Create consistent routines
  • Give warnings before transitions

2. Address Sensory Needs

  • Create sensory-safe environments
  • Provide sensory tools (headphones, sunglasses, fidgets)
  • Allow sensory breaks
  • Reduce sensory demands when possible
  • Work with an occupational therapist

3. Reduce Unnecessary Demands

  • Prioritize essential demands during high-anxiety times
  • Allow escape routes from overwhelming situations
  • Reduce pressure to mask or perform socially
  • Provide downtime and recovery periods
  • Recognize when anxiety is behind "behavior"

4. Teach Coping Skills When Calm

  • Practice strategies during low-anxiety times
  • Use visual supports for coping steps
  • Identify early warning signs together
  • Create a "calm down kit" or plan
  • Consider adapted breathing exercises or grounding techniques

5. Validate and Accept

  • Take their anxiety seriously – don't dismiss it
  • Validate that their experience is real
  • Avoid minimizing ("there's nothing to be scared of")
  • Model calm responses
  • Praise brave attempts, not just outcomes

6. Support Social Situations

  • Practice social scenarios in advance
  • Use social stories
  • Provide scripts for common situations
  • Identify safe people to go to
  • Allow breaks from social demands
πŸ’‘

Clinical Director's Insight

"In my 20+ years of working with autistic children and families, I've seen how anxiety often underlies many of the behaviors that concern parents most. When we identify and address anxiety triggers – whether sensory, social, or related to uncertainty – we often see dramatic improvements in overall functioning and quality of life."

– Jennifer Harbour, M.S., BCBA

Anxiety Therapy for Autistic Individuals

Traditional anxiety treatments can be effective when adapted for autism:

Modified Cognitive Behavioral Therapy (CBT)

CBT can be effective when adapted to include:

  • Visual supports and concrete examples
  • Special interests incorporated into treatment
  • Longer treatment duration
  • Parent/caregiver involvement
  • Sensory factors addressed
  • Social skills components
  • Less reliance on abstract thinking

Other Therapeutic Approaches

  • Acceptance-based therapies: ACT, mindfulness
  • Occupational therapy: For sensory-related anxiety
  • Play therapy: For younger children
  • Art or music therapy: Alternative expression

Finding the Right Therapist

  • Experience with autism specifically
  • Understanding of sensory needs
  • Willingness to adapt approaches
  • Neurodiversity-affirming perspective
  • Good fit with your child's communication style

Medication Considerations

For some autistic individuals, medication may be helpful alongside behavioral strategies:

  • SSRIs (selective serotonin reuptake inhibitors) are commonly prescribed
  • Often start at lower doses than typical due to sensitivity
  • Side effects may present differently
  • Close monitoring is important
  • Medication works best alongside behavioral support

Always consult with a physician experienced in autism when considering medication. Discuss both potential benefits and risks.

Start Your Child's Journey Today

Buzz ABA provides comprehensive, evidence-based ABA therapy in Concord, Manchester, Nashua, and surrounding NH communities. Our neurodiversity-affirming approach helps children thrive.

Schedule Free Consultation

Frequently Asked Questions

Why is anxiety so common in autism?

Anxiety affects 40-80% of autistic individuals, compared to about 15% of the general population. Contributing factors include sensory overwhelm, difficulty predicting social situations, fear of change, past negative experiences, masking exhaustion, and neurological differences in how the brain processes uncertainty and threat.

How does anxiety present differently in autism?

Anxiety in autism may look different: it can present as increased stimming, meltdowns, shutdowns, aggression, avoidance, rigid/controlling behavior, physical symptoms, sleep problems, or increased repetitive behaviors. Traditional anxiety signs like verbalizing worry may be less common, especially in those with communication differences.

What triggers anxiety in autistic children?

Common triggers include sensory overload, changes in routine, social situations, transitions, unexpected events, new environments, uncertainty about what will happen, feeling misunderstood, pressure to mask or act neurotypical, and past traumatic experiences. Many autistic individuals are also anxious about making mistakes or being judged.

How can I help my autistic child with anxiety?

Strategies include: providing predictability through routines and visual schedules, preparing for changes in advance, creating sensory-safe spaces, teaching coping skills when calm, validating feelings, reducing unnecessary demands, addressing underlying sensory needs, and working with therapists experienced in autism and anxiety. Avoid forcing exposure without support.

Can autistic children benefit from anxiety therapy?

Yes, with appropriate modifications. Traditional CBT (Cognitive Behavioral Therapy) can be effective when adapted for autism – using visual supports, concrete language, and addressing sensory and social factors. Look for therapists experienced with neurodivergent clients. Some autistic individuals benefit from different approaches like acceptance-based therapies or occupational therapy for sensory-related anxiety.

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Autism & Anxiety: A Parent's Guide | Buzz ABA Blog